Campaign Closed

B8378a22 fe09 4708 b592 5f92af804692


Boler-Parseghian Center for Rare and Neglected Diseases

The Boler-Parseghian Center for Rare and Neglected Diseases (CRND) at the University of Notre Dame develops CURES for rare and neglected diseases. We have developed a new drug to treat Niemann Pick Type C, a rare and invariably fatal neurodegenerative disease that sadly took the lives of three grandchildren of Notre Dame’s beloved football coach Ara Parseghian. CRND researchers are also developing gene therapy and new medicines for Non Ketotic Hyperglycinemia, a rare neurological disease that has also affected our Notre Dame families and others in Northern Indiana. In addition, we are committed to research treatments for other neurodegenerative diseases, rare cancers and rare resistant infections. We are dedicated to assisting rare disease patients and families. We believe in partnerships in research and education that can transform patient lives. We gratefully recognize that every step with you enables a better future. We will find treatments for rare and neglected diseases!

0
Days Left
$4.18 k Share of Challenge Fund

Thanks To Our Supporters!

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $50.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $200.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $25.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $25.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $300.00

  • No user image square

    - $20.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $100.00

  • No user image square

    - $200.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $50.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $25.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $40.00

  • No user image square

    - $100.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $20.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $30.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $80.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $25.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $100.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $20.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $20.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $50.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

  • No user image square

    - $10.00

Description

The Center for Rare and Neglected Diseases has built partnerships between Notre Dame researchers and pharmaceutical companies to translate drug and genetics research into new therapies that reach the clinic. We develop treatments for multiple rare and neglected diseases. Currently a new formulation of an FDA approved drug is moving forward for testing in patients with Niemann Pick Type C as well as other neurological diseases and cancers. CRND faculty also work with patients and their families, healthcare providers, federal organizations, Notre Dame students and fellows, to broadly support research to better understand rare neurological diseases, rare cancers and rare resistant infection and develop precision medicine therapies for these diseases.

Donations are applied to...

During this exciting time, we have the unique opportunity to earn a portion of a $1 Million! Make a $10 gift on Notre Dame Day (April 23 – 24), and receive 5 votes to cast. The total number of votes we receive decides our percentage of the $1 Million. Please vote for us!

Why are donations necessary?

We encounter many requests for assistance from rare disease families. Your financial contribution will help us to give them a chance. If you believe in research and education that can transform a child's life, now would be a perfect time to give. Our successes cannot be possible without your partnership, commitment and support. We thank you. Every step, even small ones, enables us to envision future possibilities.